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Patient Stories

At the Fetal Care Center, we have so many success stories of babies who are happy, healthy children today. Learn more about their experiences with diagnosis and treatment with our team.

Patient Stories: Congenital Diaphragmatic Hernia (CDH)

MaddyMaddy
At 20 weeks gestation, Angie and Eric Levy were anxious to find out if their first baby was a girl or a boy. Yet, the news the young couple received during a routine ultrasound appointment was devastating.  The Levy's learned their baby had right sided Congenital Diaphragmatic Hernia (CDH).  Read Maddy's story.


Lincoln
Receiving a diagnosis of congenital diaphragmatic hernia (CDH) at 23 weeks gestation wasn't what first-time parents, Dorothy and Dan Olds, expected. But thanks to the Fetal Care Center team of maternal-fetal specialists at Barnes-Jewish Hospital and pediatric specialists at St. Louis Children's Hospital, Baby Lincoln has had an amazing journey in his first year! Read Lincoln's story.


Anna PasleyAnna
Baby Anna is a special little girl.  She was born with congenital diaphragmatic hernia (CDH). But even before she was born, Baby Anna and her mom were receiving care at the Fetal Care Center.  She spent the first few weeks of her life in the Newborn Intensive Care Unit at St. Louis Children's Hospital. Meet Baby Anna.


Fetal UltrasoundBenjamin
During a routine ultrasound at twenty weeks, Kelly and David Hubble learned their baby had a birth defect called Congenital Diaphragmatic Hernia (CDH). More common than Spina Bifida, muscular dystrophy and cystic fibrosis, CDH remains a mysterious disease with no known cure. Even with the benefit of advanced preparation, the Hubbles faced a long journey.  Read Benjamin's story.


Patient Stories: Congenital Heart Disease

Baby Logan with ParentsLogan
For new parents Joe and Michelle Dixon of Joplin, Missouri, a routine ultrasound of Baby Logan at 20 weeks gestation was a scary moment. Specialists with the Fetal Care Center confirmed a diagnosis of double outlet right ventricle, a serious heart condition where both the aorta and pulmonary artery come off the right ventricle of the heart. Logan's diagnosis was just one of several scary moments -- followed by good news -- his parents endured over the past year.  Read Logan's story and learn why Father's Day is so special.


Austin
A fetal echocardiogram confirmed what an ultrasound showed: Austin was diagnosed with a rare, congenital heart defect known as double inlet left ventricle.  Careful monitoring and preparation by the Fetal Care Center team helped prepare the family before his birth. Read Austin's story.



Patient Stories: Congenital Cystic Adenomatoid Malformation (CCAM)

Baby GraceGrace
Baby Grace just turned one! With the twinkly blue eyes and eager smile of a giddy party hostess, she wears the face of a girl who's ready to celebrate. But this particular party will celebrate more than the passage of one year. An ultrasound at 20-weeks gestation uncovered a lung abnormality in Baby Grace. She would ultimately be diagnosed with Congenital Cystic Adenomatoid Malformation (CCAM), which causes cysts to form in the lungs. When her parents, Christie and Ben, were referred to the Fetal Care Center, they formed an instant connection. Read Grace's story.


Patient Stories: Congenital Pulmonary Airway Malformation (CPAM)

Baby GraceDillon
When Carol and James Waeckerle were expecting their second child, they were not concerned. There were no complications when they had their first son, Owen, 6, so when it was time for their 20-week ultrasound, they expected things to be routine. But Dillon was diagnosed with Congenital Pulmonary Airway Malformation (CPAM). Read Dillon's story.


Patient Stories: Congenital Neurological Disorders

Fetal SurgeryLuke
Bringing baby Luke into this world was a team effort that began nearly 18 weeks before his birth.  Diagnosed with bilateral frontoparietal polymicrogyria, Luke's parents found comfort in being prepared. Read Luke's story.


Patient Stories: EXIT Procedure

Rouse TwinsThe Rouse Twins
When doctors saw a mass growing on the neck of one of Sarah and Jason Rouse's twin boys, they sent the family to The Fetal Care Center. There, a team of Washington University physicians at St. Louis Children's and Barnes Jewish Hospitals performed an ex utero intrapartum treatment (EXIT) procedure to safely deliver both boys. Watch our video about the EXIT procedure.


Patient Stories: Omphalocele

Hayden HoskinsHayden
"He's our miracle baby."  Excitement turned to uncertainty during an ultrasound at 20 weeks gestation.  Baby Hayden was diagnosed with an omphalocele, a birth defect in which part of an infant's internal organs grow externally in a sac through the belly button. Read Hayden's story.


Ike at birthIke
When Ike's parents learned of his omphalocele diagnosis midway through their pregnancy, they turned to the experts at the Fetal Care Center for treatment, care and support.  Read Ike's story and find out how he's doing three years later.


Patient Stories: Spina Bifida

Makenna BarnesMakenna
Midway through their pregnancy, Meredith and Joe Barnes of Champaign, Illinois, received devastating news. At 18 weeks gestation, their daughter Makenna was diagnosed with a severe form of spina bifida known as myelomeningocele.  In the midst of their anguish, Meredith and Joe found hope at the Fetal Care Center. Read Makenna's story.


Patient Stories: Twin-Twin Transfusion Syndrome (TTTS)

The Biffar Twins
During Sara's pregnancy, physicians learned that her twins were not growing at the same rate.  The babies were diagnosed with Twin Twin Transfusion Syndrome (TTTS), a condition where one twin receives too much blood and one receives too little.  If not corrected, the babies risked heart failure or death. A minimally invasive laser procedure, fetoscopic laser ablation therapy, helped equalize the flow of blood.  Meet Jade and Lily and learn more about the laser procedure.


The McGrew TwinsThe McGrew Twins
Learning they were going to have twins was a pleasant surprise for Michelle and Joe McGrew. Learning those twins had a condition called Twin-Twin Transfusion Syndrome was also a surprise that created a lot of anxiety throughout Michelle's pregnancy. But thanks to several fluid reduction procedures at the Fetal Care Center at St. Louis Children's Hospital and Barnes-Jewish Hospital, their baby girls were born happy and healthy. Watch the McGrew twins' story.


Tegan and MiaThe Roy Twins
Michael and Lyndsay Roy have two beautiful, healthy baby girls. But Lyndsay did not have a typical pregnancy. Her babies were diagnosed with Twin-Twin Transfusion Syndrome and the amniotic fluid was not evenly distributed between the babies – causing one baby to have dangerously high levels. They were treated at the Fetal Care Center at St. Louis Children's Hospital and Barnes-Jewish Hospital, where Lyndsay underwent a fluid reduction procedure to equalize the fluid between both babies. Meet Baby Tegan and Mia.


Contact Us

For more information, contact the Fetal Care Center at 866.867.3627.

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